The Vital Importance of Human Rights for Individuals Diagnosed with Developmental Disabilities

Human rights are a universal promise of dignity, respect, and opportunity. However, for individuals diagnosed with developmental disabilities, these rights take on a unique significance. They serve as the foundation for inclusion and equality, ensuring protection from discrimination, access to necessary accommodations, and lighting the path to empowered living. Upholding these rights empowers individuals diagnosed with developmental disabilities to thrive, enabling them to live fulfilling lives as valued members of society.

Yet, the promise of universal human rights is not always realized for those in the developmental disability community. Barriers to accessibility, entrenched discrimination, and underfunded support systems often stand in the way of equity. Advocacy for these rights is not just a moral imperative; it’s a practical necessity to create a society where everyone can live with dignity and opportunity.

Self-Advocates Corner: Actively Participating in Voting and Exercising the Human Right to Vote

At Sunnyhill, we emphasize the importance of self-advocacy and empowering individuals to participate in all aspects of life, including exercising their fundamental right to vote. Megan Shoults, Director of Jefferson County Services, shares an update on recent voting experiences and the significance of this human right:

• The Human Right to Vote: Voting is not just a civic duty but a fundamental human right that allows individuals to influence decisions that impact their lives. At Sunnyhill, we are committed to ensuring those we support can actively engage in the democratic process and exercise their right to vote.

• Casting Their Votes: Recently, several individuals from the Jeffco Waiver & Assisted Living Facility had the opportunity to cast their votes. It was a proud moment to see them engage in the election process, make their voices heard, and actively participate in this important aspect of democracy.

This initiative exemplifies how we promote self-advocacy, inclusion, and rights for the individuals we support. Through participation in voting, we reaffirm the values of autonomy, dignity, and respect for every person in our community.

How Human Rights Protect and Empower

Human rights frameworks like the Americans with Disabilities Act (ADA) and the United Nations Convention on the Rights of Persons with Disabilities (CRPD) provide legal protections and promote inclusion. Here’s how they make a meaningful difference:

• In Education: Laws like the Individuals with Disabilities Education Act (IDEA) ensure children with disabilities have access to education tailored to their needs.

• In the Workforce: Employers are mandated to provide reasonable accommodations, ensuring access to meaningful employment.

• In the Community: Programs designed to encourage independent living and community involvement.

• In Justice Systems: Protections ensure individuals have access to legal support if their rights are violated.

The Vital Importance of Human Rights for People with Developmental Disabilities

Human rights are essential for all individuals but take on even more significance for people diagnosed with developmental disabilities. These rights provide a foundation for dignity, equality, and inclusion. Here’s a summary of why human rights matter for this community:

1. Equal Recognition and Protection: Individuals with IDD are entitled to the same legal, civil, and human rights as everyone else, ensuring their autonomy and participation in society.

2. Combating Discrimination: Human rights help address barriers that prevent individuals with IDD from accessing education, employment, and social activities.

3. Promoting Inclusion: Rights like access to education, employment, and social participation are key for fostering a sense of belonging.

4. Necessary Supports: Human rights frameworks acknowledge that individuals with IDD may require additional support to exercise their rights fully.

5. Protection from Abuse: People with IDD are more vulnerable to abuse; human rights safeguards help protect them from mistreatment.

6. Self-Determination: Human rights empower individuals with IDD to make their own decisions, promoting independence and personal growth.

7. Addressing Multiple Forms of Discrimination: Human rights recognize the complexities of intersecting forms of discrimination and promote equitable treatment.

8. Access to Healthcare and Services: Human rights protections ensure access to healthcare and services essential for well-being.

In conclusion, human rights are not abstract ideals but practical, real-world tools that directly affect the lives of individuals with developmental disabilities. By upholding these rights, we help create a more inclusive, just society for everyone.

The Impact of Budget Cuts: A Growing Threat to Human Rights in Missouri

Missouri is facing a human rights crisis that has left thousands of individuals with developmental disabilities without the services necessary for them to live with dignity and independence, threatening their full participation in society.

Mary Ellen’s story highlights the critical challenges people with disabilities face in navigating complex healthcare and support systems. In November 2023, Mary Ellen was living independently and working, but after a health crisis, her Medicaid was mistakenly categorized under Expansion Coverage instead of the Aged, Blind, and Disabled (ABD) category. This error prevented her from accessing critical funding through the Department of Mental Health (DMH).

Despite persistent efforts by Mary Ellen’s sister, Marilyn, and the Family Navigator, the Medicaid office failed to process the correction, freezing vital funding and restricting access to needed services like supportive housing, day programs, and personal care. As a result, Mary Ellen’s independence and quality of life were severely impacted. By July 2024, her Medicaid was finally approved, but the delay meant the waiver freeze continued to block her access to vital supports.

Eventually, Mary Ellen was moved to a Skilled Nursing Facility, more than 60 miles away from her family. This isolation compounded her emotional and physical challenges and underscored the issue of unnecessary institutionalization, a violation of the Olmstead Act, which mandates community-based services.

In response, Mary Ellen’s team is advocating for her rights under the Olmstead Act to secure a move to a less restrictive setting and ensure she can live independently. Her story underscores the long-term impact of waiver freezes and highlights the urgent need for systemic reform to ensure individuals with disabilities receive timely access to supports.

The Crisis at Hand

As of Fall 2024, 366 individuals are on waitlists for essential services, unable to thrive:

• 63 individuals waiting for residential services

• 303 individuals awaiting in-home support

• 650 adults placed in inappropriate settings like hospitals, jails, and shelters

These figures are more than just numbers—they represent a growing tragedy in our communities.

The Human Cost

The consequences of these cuts are devastating. Families are under tremendous strain:

• Parents of recent graduates struggle to find affordable care options.

• Loved ones sacrifice careers and personal well-being to provide round-the-clock support.

• Individuals are left without crucial day programs that promote independence and self-reliance.

Without the services they desperately need, our neighbors diagnosed with developmental disabilities are facing isolation, a loss of skills, and an increased vulnerability to abuse and neglect. Their fundamental right to be active participants in society is being denied.

A Crisis of Choice

This crisis is the result of deliberate decisions:

• $79.4 million in funding for developmental disabilities services was slashed from Missouri’s state budget.

• Political priorities were placed ahead of human needs.

• Nearly $2 billion in new funding was allocated to other projects while disability services were left to crumble.

These choices harm Missouri’s most vulnerable citizens. Cuts have pushed individuals into unsafe, ill-equipped environments, such as hospitals, jails, and shelters, showing the urgent need for systemic reform.

Mary Ellen’s Story: Advocacy for a Better Future

The time to act is now. Here’s how you can make a difference:

1. Educate: Share this crisis with your network and raise awareness.

2. Advocate: Contact your representatives and demand restored funding for developmental disability services.

3. Support: Volunteer or donate to organizations like Sunnyhill, working to bridge the gap.

Missouri’s funding crisis has reached alarming levels, and it is up to all of us to advocate for change. We must restore funding, prioritize the needs of individuals with developmental disabilities, and rebuild a system that empowers people to live with dignity and independence. This is a human rights issue, not just a policy issue.

Get Involved: Community & Fundraising Events

❄️ Be Part of Let It Snow – Flurries of Hope! ❄️

This holiday season, we invite you to join Sunnyhill in making a difference. Through our Let It Snow – Flurries of Hope campaign, you can help bring hope and support to individuals in our programs in two powerful ways:

• Contribute to the Annual Appeal
  Every donation to our Annual Appeal fuels Sunnyhill’s programs and services, ensuring that we can continue providing year-round care for those we serve. Your generosity helps us create a supportive and inclusive community for individuals with developmental disabilities.

• Buy a Snowflake to Spread Holiday Cheer
  Each Sunnyhill Snowflake you purchase provides warmth, essentials, meals, and the joy of the season to individuals in need. Every snowflake lights up a life and brings essential support to those who need it most.

This season, Sunnyhill’s Snowflake of Hope wish is that each individual we serve feels the warmth of community and the security of having their essential needs met. Let’s come together to make this wish come true and let it snow hope and cheer! Make sure to visit Sunnyhill’s social media and website to see wishes from our community and staff.

Shine your light of generosity on those supported by Sunnyhill’s programs and services this holiday season. For all donations over $250, contributors will receive a custom resin snowflake created by a Sunnyhill artist.

Upcoming Events:

• The Sunlit Circle Ticket Package On Sale Now - $500 Donation for VIP experiences at March Matchness on 3/20/25, Sunnyhill Derby on 5/3/25, ARTventure 2025, July 2025, and Sunnyhill's Pickleball Tournament on 9/14/25

• 3/20/2025: March Matchness, Top Golf Chesterfield, MO

  • A unique twist on college basketball tournament season – enjoy golf, delicious brunch buffet, bottomless drinks, and spirited games while helping us raise $50,000 to make Sunnyhill Adventures more inclusive with extended golf carts.
    More Information: https://MarchMatchness25.eventbrite.com

• Support the Sunny Day Fund! 🌞

  • Launched in October 2024, the Sunny Day Fund provides crucial support for Sunnyhill individuals facing challenges like health expenses, utility bills, food insecurity, and housing instability. This fund removes barriers, allowing individuals to focus on their goals and well-being.

  • How It Works:
    10% of all donations and fundraising proceeds go directly to the Sunny Day Fund. You can also contribute fully to the fund to maximize its impact. We aim to raise $250,000 annually to provide ongoing support.

    How You Can Help:

    • Donate: Your gift helps cover urgent needs like health, housing, and daily essentials.

    • Spread the Word: Share the Sunny Day Fund with friends and family.

    • Get Involved: Join volunteer opportunities and events to strengthen the fund’s impact.

  • Together, we can make life’s challenges a little easier, one sunny day at a time! 🌞

Wellness Focus: Caregivers Corner

Caregivers play a crucial role in the lives of individuals diagnosed with developmental disabilities, and it's essential for them to prioritize their own well-being. Managing stress is key to sustaining caregiving efforts, and techniques like mindfulness, setting boundaries, staying active, and seeking support can help reduce burnout. A balanced diet, including leafy greens, whole grains, nuts, and berries, can also lower stress and improve mood, making it easier to handle the demands of caregiving. Additionally, self-care practices like taking regular breaks, getting enough sleep, and engaging in hobbies are vital for maintaining physical and emotional health.

Caregivers are also powerful advocates for change. By staying informed about laws like the Americans with Disabilities Act (ADA), joining advocacy groups, and speaking out, caregivers can influence policies and improve resources for people with disabilities. Sharing personal stories and getting involved in community initiatives can further drive awareness and build support. At Sunnyhill, we are committed to providing caregivers with the resources they need to thrive, ensuring that both caregivers and individuals with developmental disabilities can lead fulfilling and empowered lives.

Funder spotlight: Behrmann Foundation & Jefferson Foundation

We are deeply thankful for the generous grant contributions from the Behrmann Foundation and Jefferson Foundation to enhance the inclusivity and accessibility of Sunnyhill Adventures. Thanks to their incredible support, we will be upgrading amenities that make a tangible difference for our visitors.

This funding will allow us to install a new restroom by Lake Kirchner, improving convenience and accessibility for all guests. Additionally, we will add fire pit and fencing amenities near the Old Lodge, empowering socialization activities.

These upgrades will significantly enhance the experience for our visitors in 2025 and beyond. We are grateful for the impact of the Behrmann Foundation and Jefferson Foundation in helping us create a more inclusive, enjoyable environment for everyone. Thank you for being part of Sunnyhill’s journey!

Executive Message: Amy Wheeler, CEO

At Sunnyhill, we believe that everyone, regardless of ability, deserves dignity, respect, and equal opportunities. Human rights are at the heart of everything we do, and we’re committed to advocating for those diagnosed with developmental disabilities.

Too often, people with disabilities face barriers that limit their access to essential services like healthcare, education, and employment. We’re here to change that—through advocacy, community programs, and partnerships that create real, lasting impact.

We also focus on empowering individuals to speak up for themselves, ensuring their voices are heard in the decisions that affect their lives. Inclusion, equality, and self-advocacy are not just values at Sunnyhill—they are the foundation of our work.

Together, we can create a world where everyone’s rights are fully realized. Thank you for supporting this important mission.

Director’s Corner:

• Amy Guignon, Applied Behavioral Services
  We’re hiring at least two new BCBAs and have an In-Home Lead BCBA starting in February. Several RBT positions are also open to support service delivery for the people we support at Sunnyhill.

• Jayne Grisham, Adventures Camp & Travel
  No Update for December 2024.

• Tamico Jones, Advocacy & Family Navigation Services
  Sunnyhill was proud to present at The Recreation Council of Greater St. Louis about creating inclusive recreational experiences. In addition, we presented training for the Wellston Police Academy.

• Becky Mullins, Greater St. Louis ISL & Waiver
  The St. Louis Waiver Department has been busy preparing for the holidays. A heartfelt thank you to everyone who has contributed to purchasing gifts. For those we support without family nearby, your donations bring love and joy during this special time of year.

  We are also focused on securing new housing opportunities for the people we support. We believe everyone deserves a welcoming, safe, and accessible home. However, finding suitable housing remains a challenge due to income limitations and specialized needs. We continue to explore new options to address this ongoing need.  Donate to Greater St. Louis Waiver Snowflake Fund or buy off our Amazon Wish List.

• Megan Shoults, Jefferson County ISL & Waiver
  We are deeply grateful for the generous donations this holiday season, including $1,500 from one family and contributions from organizations like the Knights of Columbus. Several Amazon wish list gifts have also been donated, sure to bring joy to those we serve.

  As the season unfolds, we're excited to host our Annual Jefferson County Party at Camp on December 16th! The Annual Jefferson County Training will take place on December 19th at Sunnyhill Independence Center, with nearly 98% of our staff signed up to attend.

  Looking ahead, we are set to complete the final step in January of transitioning the last five homes from the St. Louis waiver to the Jefferson County waiver, a process we began in July. Our team is prepared for the new year, focusing on growth and maintaining high standards in recordkeeping.  Donate to Greater Jefferson County Services Snowflake Fund or buy off our Amazon Wish List.

• Amanda Kehoe, Individualized Supporting Living Assistance (ISLA) and Pre-ISLA
  The ISLA team is focused on the Sunnyhill let it snow campaign. We are getting lists from our people and checking them twice. We are working to make sure that everyone in need is getting support this Holiday Season. Donate to ISLA Snowflake Fund or buy off our Amazon Wish List.

• Jennifer Gibbs, Nursing
  No Update for December 2024.

• Kathleen Branson, CFO
  No Update for December 2024.

• Kelly Scarcliff, Human Resources
  No Update for December 2024.

• Interested in learning about employment opportunities at Sunnyhill? Visit our career listings on Indeed.

• Jim Schmitt, Information Technology & Security Services
  No Update for December 2024.

• Chris Shoults, Facility & Maintenance
  No Update for December 2024.