Empowerment in Every Step: Breaking the Silence

Communication barriers can significantly impact individuals diagnosed with developmental disabilities, often resulting in social isolation. For those who are nonverbal or face communication challenges, forming meaningful connections can be incredibly difficult. However, with the right technology, community support, and specialized services, we can work to reduce these barriers. At Sunnyhill, we are dedicated to dismantling these obstacles and fostering inclusive environments that promote effective communication in diverse ways. Our ARTventure event exemplifies how creative expression can bridge communication gaps, empower individuals, and educate the public on the transformative power of self-advocacy.

Meet Matthew: A Story of Communication and Positivity

Matthew, a long-time resident of our Adult Living Facility (ALF), embodies resilience and positivity. Now in his 50s, he continues to inspire those around him, despite the natural challenges that come with aging. Though Matthew often repeats the same phrases and speaks slowly, he brings a profound depth to every interaction—what some might see as slowing down is, for Matthew, a unique way of engaging with the world.

His unwavering positivity is one of Matthew’s most remarkable qualities. He radiates happiness, and his joyful outlook is contagious. Whether conversing with staff, peers, or anyone nearby, his presence has the power to uplift others. His deliberate manner of speaking encourages those around him to pause, listen, and appreciate the moment—a rare gift in our fast-paced society.

Matthew’s journey illustrates the power of patience, support, and optimism. In a phase of life where many might feel discouraged by changes in their abilities, Matthew continues to flourish. His steady approach serves as a reminder that progress looks different for everyone. Growing older doesn’t mean fading away; it means discovering new ways to be bold. His story teaches us that communication transcends words; it is about the heart behind them.

Improving Access to Technology for People diagnosed with Developmental Disabilities

In today’s digital age, technology is essential for staying connected, accessing vital services, and engaging with society. However, many individuals diagnosed with developmental disabilities encounter significant barriers to this access. Recent research highlights these challenges and the progress being made, underscoring the serious consequences of inadequate access.

Current Technology Access

The disparity in technology access is evident:

• Desktop and Laptop Ownership: 62% of adults with disabilities own a desktop or laptop, compared to 81% of those without.

• Smartphone Ownership: 72% of adults with disabilities have smartphones, while 88% of their non-disabled peers do.

• High-Speed Internet: 72% of adults with disabilities have high-speed Internet at home, versus 78% of those without.

• Alarmingly, only 26% of Americans with disabilities possess all four essential technology resources—high-speed Internet, a smartphone, a computer, and a tablet—compared to 44% of those without.

Consequences of Limited Access

The ramifications of limited technology access can be severe:

• Social Isolation: Without Internet and digital devices, individuals may feel increasingly lonely, missing opportunities for online friendships and support networks.

• Limited Access to Services: Many essential services, including healthcare, education, and daily living assistance, are increasingly offered online, and limited access can hinder necessary support.

• Economic Disadvantage: Technology access is crucial for economic opportunities; those without it may struggle to find jobs, access training, or engage in income-generating activities, exacerbating financial challenges.

Internet Usage Patterns

The way individuals use the Internet further highlights the impact of limited access:

• Online Presence: 15% of Americans with disabilities do not go online, compared to just 5% of those without disabilities.

• Daily Internet Use: 75% of Americans with disabilities use the Internet daily, while 87% of their peers do.

• Smartphone Usage: 84% of individuals with disabilities use smartphones daily, rising to 91% when tablet use is included.

• GPS and Apps: 72% utilize their smartphone’s GPS—30% more than the general population—and 70% use smartphone apps.

Barriers to Access

Several factors contribute to the digital divide:

• Economic Barriers: Individuals with disabilities are more than twice as likely to live in poverty, limiting their ability to afford technology and internet services.

• Need for Specialized Training: Effective online platform use often requires specific training and support.

• Assistive Technology Incompatibility: Some technology is not fully compatible with assistive devices, such as screen readers, restricting access for certain users.

Several initiatives are underway to improve access:

• Affordable Connectivity Program: Provides up to $30 monthly broadband discounts for eligible households.

• Missouri Digital Inclusion Project: Funded by the Missouri Developmental Disabilities Council, this project offers technology training, resource enrollment support, and leadership opportunities.

• Technology First Initiative: Launched by the Missouri Division of Developmental Disabilities, this initiative aims to enhance independence and quality of life through assistive technology and address direct care staffing shortages.

• Digital Equity Plan: A comprehensive strategy to increase digital economy opportunities, enhance digital skills, improve online security, and enhance health outcomes through telehealth.

• Missouri Assistive Technology (MOAT): Offers device loan programs, digital events, digital skills classes, and staff training to support individuals with disabilities.

• Telecommunications Access Program (TAP): Provides free adaptive equipment for home telecommunication services to eligible residents.

Looking Ahead

While progress is being made, much work remains. Ensuring that individuals with developmental disabilities have access to affordable, functional technology and receive proper training and support is essential for full digital inclusion. By addressing these challenges, we can create a more connected and inclusive digital world for everyone.

Ambulatory Communication Device Overview

At Sunnyhill, we celebrate the diverse ways our community members express themselves and connect. Communication is a fundamental aspect of our lives, and we understand that everyone has unique needs and preferences. By utilizing various devices and technologies, individuals can enhance their communication skills, fostering meaningful interactions and relationships. Whether through tablets for typing and picture selection, adapted phones for those with visual impairments, or specialized wheelchairs allowing for hands-free control, these tools play a vital role in empowering our community. As we explore the different forms of communication available, Sunnyhill is committed to breaking down these barriers and empowering individuals through innovative solutions like Ambulatory Communication Devices.

What Are Ambulatory Communication Devices?

Ambulatory Communication Devices (ACDs) are portable tools designed to help individuals with communication difficulties express themselves more effectively. These devices range from simple picture-based communication boards to more advanced electronic devices that use text-to-speech technology. ACDs are tailored to the individual’s needs, enabling them to share their thoughts, needs, and desires with greater independence.

The Impact of ACDs on Lives

For many of the individuals we support, these devices are life-changing. With the help of ACDs, they can:

• Express Needs and Preferences: Whether communicating a basic need, like requesting a glass of water, or sharing more complex thoughts, ACDs give individuals a voice.

• Build Relationships: Communication is vital in forming relationships. ACDs help users connect with loved ones, caregivers, and peers, fostering a sense of belonging and community.

• Increase Independence: By enabling clear communication, ACDs allow individuals to advocate for themselves and make choices, leading to greater autonomy in their daily lives.

Types of Ambulatory Communication Devices and Average Costs

Ambulatory Communication Devices (ACDs) vary in complexity and function, catering to the specific needs of each individual. Below are some common types of devices and their average costs:

1. Picture-Based Communication Boards

Description: These are simple, low-tech communication aids that use pictures or symbols to represent words and phrases. Users point to the images to communicate their needs or thoughts.

Average Cost: $30 - $100

Ideal For: Individuals with mild to moderate communication challenges who respond well to visual cues.

2. Communication Apps on Tablets

Description: Tablets like iPads or Android with communication apps (such as Proloquo2Go, TouchChat, or LAMP Words for Life) are versatile and customizable. They use text-to-speech functions to help individuals communicate.

The Average Cost is $300 - $800 for the tablet, plus $200 - $300 for app software.

Ideal For: Individuals who need a portable, flexible communication tool that can grow with their needs.

3. Dedicated Speech-Generating Devices (SGDs)

Description: These are specialized devices designed specifically for communication. They often have pre-programmed phrases, customizable settings, and robust text-to-speech technology.

Average Cost: $1,500 - $5,000

Ideal For: Individuals with more complex communication needs require a durable, reliable, and easy-to-use device.

4. Eye-Tracking Communication Devices

Description: Eye-tracking devices enable users with limited motor control to communicate using only their eye movements. These high-tech devices track where the user is looking and translate that into communication.

Average Cost: $10,000 - $20,000

Ideal For: Individuals with severe physical impairments who cannot use their hands to communicate.

5. Wearable Communication Devices

Description: These are compact, portable devices, such as communication watches or badges, that can be worn on the body. They are designed for ease of access and portability.

Average Cost: $100 - $800

Ideal For: Individuals who prefer a discreet and easily accessible communication device.

Exploring the Power of Art

Art therapy is a powerful tool for self-expression, emotional healing, and personal growth, especially for individuals with developmental disabilities. At Sunnyhill, we believe in amplifying the voices of our community through creative outlets. Every spring, we host Art Studio sessions, culminating in a vibrant and inclusive gallery event in the summer, showcasing the incredible talents of Sunnyhill’s artists. From the artwork, pieces are chosen to become a fall ARTwear collection used as hero imaging for fundraising events.

Types of Art Therapy:

• Visual Arts Therapy: Drawing, painting, and sculpting to express emotions and foster relaxation.

• Music Therapy: Using instruments, singing, and rhythm to promote emotional expression and social interaction.

• Dance/Movement Therapy: Employing dance to support physical and emotional well-being.

• Drama Therapy: Storytelling and role-play to explore emotions and enhance communication.

• Poetry and Writing Therapy: Writing as a means of self-expression and emotional exploration.

Sunnyhill’s Art Studio and ARTventure Gallery Event

At Sunnyhill, our spring Art Studio sessions allow participants to explore their creativity through various forms of art therapy. These sessions provide a supportive and inclusive space for individuals to create art that reflects their experiences, emotions, and unique perspectives.

These sessions culminate with our Inclusive Gallery Event, held every summer. This event serves as a platform to amplify the voices of Sunnyhill's artists, showcasing their artwork in a professional gallery setting. It’s an opportunity for the community to come together, celebrate diversity, and recognize the talents of our artists. Through this event, we are proud to share the vibrant stories and creative expressions of individuals with developmental disabilities, ensuring their voices are seen, heard, and valued.

Get Involved: Community & Fundraising Events

Early Bird Sippin’ for Sunnyhill Tickets on Sale - Save $50.

Sippin' for Sunnyhill: A Night of Racing, Drinks, and Good Times!

Mark your calendar for November 7, 2024, and get ready for an unforgettable evening at Olive + Oak! Sippin' for Sunnyhill is the perfect chance to enjoy thrilling matchbox car racing, delicious food, and fantastic drinks—all while supporting a great cause in Webster Groves, Missouri.

Event Highlights:

• 🎟 VIP Experience: Take it to the next level with VIP access! Enjoy racing credentials, a custom patch hat, and a chance to win Fast Lane access for the exclusive beverage line.

• 🏁 Matchbox Car Racing: Feel the adrenaline rush as racing kicks off at 6:30 pm! Purchase a car and cheer it on—will your car cross the finish line first?

• 🍴 Tasty Bites: Indulge in gourmet hors d'oeuvres expertly crafted by the renowned chefs at Olive + Oak.

• 🍹 Open Bar: Enjoy premium drinks, from craft cocktails and Perennial beers to Anheuser-Busch brews and top-shelf spirits.

Make an Impact: Every ticket sold helps fund Emergency Go Bags for people with developmental disabilities, providing them with essential tools to stay safe and independent during emergencies. This is your opportunity to have a blast while making a real difference!

Get ready for an evening filled with fun, food, racing, and philanthropy. See you there!

Grab your tickets today at: Sippin24.eventbrite.com

Be part of the fun and make a difference—get your tickets before they're gone!

Thank you to our sponsors:

$2500 Pit Row Sponsors: Heffernan, UnitedHeartland

$1000 Garage Sponsor: Everspring Pharmacy

$500 Infield Sponsors: Color Art, Enterprise Bank & Trust, Koala Insultation, Leslie Miles

There is still time to sponsor Sippin’ for Sunnyhill!

Upcoming Events:

• The Sunlit Circle Ticket Package On Sale Now - $500 Donation for VIP experiences at March Matchness on 3/20/25, Sunnyhill Derby on 5/3/25, ARTventure 2025, July 2025, and Sunnyhill's Pickleball Tournament on 9/14/25, Plus 50% of VIP at Sippin’ for Sunnyhill (11/7/24)

• 10/29/25: Community Give Back Night at Chicken n' Pickle, St. Charles, MO

  Missed out on Sunnyhill’s Pickleball Tournament swag or want to support our efforts to build pickleball courts at Sunnyhill Adventures? Join us on October 29th at Chicken n' Pickle, where we’ll kick off Sunnyhill’s Let It Snow Annual Appeal.

• 11/7/2024: Sippin’ for Sunnyhill, O + O Hall, Webster Groves, MO

Get ready for matchbox car racing and be among the first to access the 2024 Fall ARTwear collection! Pre-sale is happening now with reduced early-bird pricing. Proceeds go towards supplying Sunnyhill community members with “Go Bags” for emergencies. Purchase Tickets at: Sippin24.eventbrite.com

• Let It Snow Annual Appeal

Shine your light of generosity on those supported by Sunnyhill’s programs and services this holiday season. For all donations over $500, contributors will receive a custom resin snowflake created by a Sunnyhill artist.

Advocacy Point: Expand Access to Assistive Communication Devices

Over 40% of individuals diagnosed with Developmental disabilities experience severe communication barriers, leading to increased isolation and reduced quality of life (American Speech-Language-Hearing Association, 2019). 17.9% of individuals diagnosed with Developmental disabilities face significant communication limitations (CDC). Art therapy has been shown to improve emotional expression and communication, especially for individuals who have difficulty with verbal communication (American Art Therapy Association)

Wellness Focus: Caregivers Corner

Effective communication with healthcare providers is essential for quality care. Yet, poor communication is linked to severe issues, including 80% of medical errors during patient handoffs. Caregivers often struggle with these challenges, particularly when coordinating between multiple providers or dealing with language barriers. For example, 47% of patients with limited English proficiency suffered moderate or worse harm due to communication issues. However, caregivers can mitigate these risks by proactively preparing questions, taking notes, and following up after appointments. These steps can significantly improve outcomes, reducing the risk of errors and enhancing the care experience.

Before the Appointment:

• Talk It Out: Chat with the person you care for about their symptoms, concerns, and questions. This shared understanding ensures you can effectively communicate their needs to the healthcare provider.

• Gather Info: Collect important medical details, such as current medications, allergies, and recent test results. Having everything ready helps the healthcare provider make informed decisions.

• Make a List: Write down any questions or issues you or the patient want to address. This ensures nothing important gets overlooked.

• Call Ahead: Confirm the appointment details and ask about any special accommodations needed. This can make the day go much smoother.

During the Appointment:

• Take Notes: Jot down key points and instructions from the doctor. These notes are invaluable for reviewing later.

• Advocate: Actively communicate the patient’s needs and encourage them to express their concerns. If something’s unclear, don’t hesitate to ask for clarification.

After the Appointment:

• Review Together: Review the notes with the patient and discuss the doctor’s recommendations. Make sure you both understand the next steps.

• Handle Follow-Ups: Fill prescriptions and schedule follow-up appointments promptly to keep the care on track.

By staying organized and communicating clearly, caregivers can significantly reduce the stress of medical appointments and improve the quality of care for the individuals they support. These strategies lead to better health outcomes and foster a stronger partnership between caregivers, patients, and healthcare providers.

Funder Highlight: Regional Art Commission of Greater St. Louis, Enterprise Bank & Trust and Blick Art Materials

We extend our heartfelt thanks to the Regional Art Commission for their generous donation of gallery space, allowing us to showcase the incredible talent of our community. It was the perfect location to welcome the public into our event. We’re also grateful to Blick Art Materials for providing the essential supplies that fueled our spring art studios, helping our artists bring their visions to life. A special thank you to Enterprise Bank & Trust for sponsoring beverages and ensuring our events were both refreshing and inspiring. Your support makes a profound difference in our mission to amplify the voices of the artists of Sunnyhill.

Executive Message: Amy Wheeler, CEO

Effective communication during doctor’s appointments is vital for maintaining a healthy outlook. Advocating for the individuals we support is an essential part of this process. During my time working with Sunnyhill’s ISLA services, I often found myself stepping in as the voice for those we support, ensuring they received the care and treatments they deserved. Clear and assertive communication is key to the success of these appointments and to safeguarding their well-being.

Equally important is providing opportunities for self-expression and confidence-building, as we’ve seen with our ARTventure gallery event. This inclusive gallery not only boosts the confidence of the artists we support by showcasing their incredible talents, but it also elevates public awareness and stories of individuals diagnosed with developmental disabilities. The event has become a powerful platform, allowing our artists to shine and inspiring the community and amplifying their voices.

Director’s Corner:

• Amy Guignon, Applied Behavioral Services
  No update for September 2024.

• Jayne Grisham, Adventures Camp & Travel
  No update for September 2024.

• Tamico Jones, Advocacy & Family Navigation Services
  September marks the start of our Transition Fair community engagement events. These fairs connect individuals, guardians, and natural supports with valuable resources and services available within their communities, providing essential guidance for those seeking assistance in navigating life transitions. These events are a crucial step in helping people access the support they need to thrive.

• Becky Mullins, Greater St. Louis ISL & Waiver
  The St. Louis waiver department was excited to welcome two people supported during the month of September. One individual transferred from another department within Sunnyhill and the other transitioned from another agency. We were also happy to celebrate DSP week with our employees. Our employees are essential to ensuring the people we support receive quality care and live a fulfilling life.

• Megan Shoults, Jefferson County ISL & Waiver
  We recently hosted two fun-filled days at camp for individuals in our PWS program, where they enjoyed volleyball, camp activities, and a BBQ with peers and staff, all under perfect weather. Everyone left with smiles and excitement for future events! In other news, there’s a buzz around the arrival of the largest locomotive in DeSoto, which we’re planning to incorporate into upcoming community outings. Additionally, we smoothly transitioned the management of a home from another department, and everything is running well. Lastly, congratulations to Jessica Treadway on her promotion to Supported Living Advisor after eight years of dedicated service!

• Amanda Kehoe, Individualized Supporting Living Assistance (ISLA) and Pre-ISLA
   We are working hard to fill open positions in the ISLA department. The ISLA team is focused on recruiting and maintaining high-quality of care for the people supported.

• Jennifer Gibbs, Nursing
  The nursing department is currently focused on distributing personalized diet folders for each individual with PWS. These folders are designed to be comprehensive resources, including detailed diet information, meal planning tools, and practical food preparation guides.

• Kathleen Branson, CFO
  No update for September 2024.

• Kelly Scarcliff, Human Resources
  No update for September 2024.

• 4Interested in learning about employment opportunities at Sunnyhill? Visit our career listings on Indeed.

• Jim Schmitt, Information Technology & Security Services
  No update for September 2024.

• Chris Shoults, Facility & Maintenance
  No update for September 2024.

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Contact Us:
Sunnyhill, Inc.
Phone: 314-845-3900
Email: social@sunnyhillinc.org
Website: www.sunnyhilliinc.org